MND SUCKS but we are strong MND Awareness broken heart T-Shirt

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Now an MND Association Patron, Rob is one of an estimated 5,000 adults in the UK currently living with MND. Every day, an average of six people are diagnosed with MND. The MND Association focuses on improving access to care, funding research, and campaigning for people living with, or affected by, MND. An A5 flyer mentioning the range of information we provide for people living with and affected by MND, or Kennedy’s disease. How to open conversations about your diagnosis with family, children, friends, colleagues and health or social care professionals. This guide includes information on difficult conversations, planning ahead and using advocates to help you raise awareness of your needs. Broadcast in 2022, the BBC documentary Rob Burrow: Living with MND took an intimate look at Rob’s life with MND more than two years on from his diagnosis. The programme follows Rob on a trip to the swimming pool with wife Lindsey, cheering on his children at school sports day and an appointment with his neurologist. This is the second time Rob has generously allowed the cameras into his home to raise awareness, after sharing the first year after being diagnosed in the documentary Rob Burrow: My Year with MND, which was released in 2020. The powerful programme was shortlisted for a National Television Award in 2021. To Rob, and his family, thank you for bravely sharing your story, for raising awareness of MND, and for allowing the world to see how motor neurone disease affects thousands of families in the UK, every single day.

Information about voice banking, the process of recording yourself speaking to create a computerised version of your voice for use on a communication aid. Breathing and ventilation This section of our guide about planning ahead, looks at how to handle sensitive conversations to help everyone feel better prepared. Information for use by children and young people Driving, transport and holiday guidance focusing on different ways to get out and about with reduced mobility. The booklet also includes information about public transport, wheelchair accessible vehicles and mobility schemes that could help support you. An interactive version of the ADRT form included in information sheet 14A - Advance decision to refuse treatment (ADRT) and advance care planning. If you become unable to make decisions or communicate, an ADRT allows you to state in advance which treatments you wish to refuse or withdraw in specific circumstances.England Rugby League's Men and Women return to international action on Saturday 29 April for the first time since last year's Rugby League World Cup - a double-header with France at Warrington which is the launchpad for a game-wide fundraising effort in aid of the MND Association. An outline of hospice and palliative care, with details of how this type of care can support you and help improve quality of life. This sheet also includes information on planning ahead, read when you feel ready to do so. Medication

Information about Kennedy’s disease, which is a separate, but similar condition to MND and is supported by the MND Association. How to find support if you experience pain, particularly if due to problems with movement or mobility. Bulbar (mouth and throat) symptomsOur information sheet that can guide you to appropriate information to help you access suitable support. Guidance on what to consider if you are planning to use air travel and wish to take NIV equipment on the journey. Benefits, financial support and social care What we've seen over the last couple of years, and with Doddie before, is that awareness is vital. It's important that we keep banging the drum and raising funds. We need to find a cure."

Information about available options if you are living with MND and considering whether to continue or leave employment.

This information sheet looks at ways to make daily life easier by using a range of equipment, including wheelchairs, and how to access this support. Our smaller introductory resources can help if you or someone you are close to has been recently diagnosed with MND. Our booklet on finding emotional support when bereaved. Includes a practical overview of what to do when someone dies, and supporting children and young people who may also be grieving.

England’s opponents France made a memorable gesture during RLWC2021 when they wore warm-up shirts with a message for Rob Burrow ahead of the Group A match at Bolton – and are again lending their support. England Rugby League’s Men and Women return to international action on Saturday 29 April for the first time since last year’s Rugby League World Cup – a double-header with France at Warrington which is the launchpad for a game-wide fundraising effort in aid of the MND Association. Researchers at Southampton University have developed a web-based patient decision aid for people with MND considering a gastrostomy tube. It aims to help people living with MND choose whether they want to have a gastrostomy tube fitted now. If they decide not to go ahead, they may want to revisit the decision later. I have a physical problem which affects my speech, but I can hear and understand you. Your help and patience would be appreciated. Thank you.”An explanation of why we ask for information and how it is used. This sheet also explains how we protect confidentiality and your rights. Disease types Identifying difficult emotions that may happen for people with a diagnosis of MND and their carers. This guide includes how to seek support and the different therapies available. Guidance on how physiotherapy can help if you have been diagnosed with MND and how to access this support.